Project
Together 4 a Better World 2026
EmpRare for health
Storytelling and shared decision-making for rare disease patients
Rete Malattie Rare APS works with people living with rare and chronic diseases across Italy, giving them real opportunities to tell their own story and take an active part in decisions about their own care. Through a storytelling award, a public exhibition and participatory work on shared health service charters, the project treats patients and caregivers as genuine partners in care, not passive recipients of decisions made without them.
